WEBVTT
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Nobody's prepared for this, these little babies.
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They just die in their sleep and we know more about it now than we did, you know, 30 years ago when our baby died, but it's still a diagnosis of nothing.
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The phone rang like close to midnight.
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We answered the phone.
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It was a lawyer from Guadalajara and he says I hear that you would like to adopt a baby.
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That little Ricky Howe saved our lives.
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Yeah, he was wonderful.
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We had probably 6,000 volunteers nationwide.
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Wow.
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We recruited Lloyd Bridges, who had lost a baby to SIDS, as our national spokesman and got him to do a PSA.
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We recruited Bozo the Clown as our national spokesman.
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Talk about how in the world is Bozo the Clown talking about SIDS?
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Well, guess what?
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It worked and it got people talking worked and it got people talking.
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We spent a long time following the research and meeting the people who were doing the research and trying to help fundraise to make sure that there was an awareness out there.
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It kept us strong.
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It kept us stronger.
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It kept us alive us stronger, it kept us alive.
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If tragedy comes into your life and you have the ability and the opportunity to make things better for other people, you have to do it.
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You just have to.
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Hello and welcome to no Wrong Choices.
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I'm Larry Samuels and I'll be joined by Larry Shea in just a moment.
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Today's episode is a little bit different from what we usually do.
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Instead of exploring a career path or sharing a very powerful personal journey story from Rick and Jane Howe that was shaped by their experience with SIDS, it's a story of turning tragedy into purpose, healing and impact.
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Before we begin, please be sure to take a moment to like, follow or subscribe to the show wherever you're listening right now.
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Let's get started Now.
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Joining no Wrong Choices are Rick and Jane Howe.
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Rick is one of my favorite people from within the business of media space and I feel like I know Jane from the countless photos that Rick posts on social media.
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So, jane, I feel like I know you already.
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Welcome to my life in a more formal fashion.
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Thank you, glad to be here Happy to be here.
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so thank you both for joining us.
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Today we're going to explore a very personal and consequential journey from Rick and Jane's lives that had a deep and lasting impact upon them and countless others their experience with SIDS.
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Thank you both for trusting us with what is obviously a very personal and heartfelt story.
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Well, the last time we did this on any kind of camera had to have been, well, my good heaven, in 1987.
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On the Phil Donahue show.
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Or John Rivers.
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We were actually on her show, and that was all in 86 and 87.
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So I can't even count back that far, but that was the last century.
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That was the last century, and I'm guessing that this is going to be a whole lot easier and more comfortable than confronting Phil Donahue and Joan Rivers.
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Joan Rivers was a piece of work.
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Phil Donahue was pretty easy, but the show was an interesting experience.
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I had a chance to watch the clip, as did Larry, and that seemed pretty intense.
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It was Well, and the audience had a lot of SIDS parents in it, so that's where the camera was panning around picking up all those people.
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Well, I promise the two of us will have a lighter touch.
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I can make you that promise, all right, all right.
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So, rick and Jane, before we get into your journey story and how SIDS impacted your life, I think it would be helpful for everyone for you to just share a little bit about what SIDS is.
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Well, this is our personal story, so I'm going to tell you about it from a personal perspective.
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SIDS is not anything I ever worried about.
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I never even thought.
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I'm not sure I even knew about it, but Rick and I were high school sweethearts and we got married and we were married for a long time.
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It's time to start a family and you know, looking at biological clocks and all that kind of stuff and as it turns out, it was not an easy thing for us to get pregnant and have a family seat of turn.
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And he was full-term, he was a healthy bouncy baby boy.
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We named him Stephen and everything was fine until it wasn't, I guess, when Stevie died.
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One thing I want to make sure to say here is that in the world of SIDS, when it comes to married couples, there's a big divorce rate.
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It seems like either this kind of a tragedy in your lifetime makes you stronger or pulls you apart.
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Well, it made Rick and I stronger, and what we decided to do was to get active.
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I think that most people who volunteer for any particular charity that's connected to a medical tragedy do it because the tragedy has affected them themselves, and so in this case, even though we didn't know a whole lot about SIDS.
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We educated ourselves rapidly and I'll tell you what, just in our situation, because SIDS can't be pre-diagnosed, it's a diagnosis upon autopsy and then we found out about the difference between a coroner and a medical examiner and what happens to the tissue samples.
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It was horrible and it made us stronger.
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It made us stronger In my particular opinion about us.
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We took that tragedy and we used it to move forwards, not backwards.
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I think a lot of people who are affected by trauma in their lives let it tear them down.
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We hope to make it build us up and I think, in our particular situation, us up.
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And I think in our particular situation, given the, it's almost like back then, the trauma about block grant money getting turned off and put back into the state and then, one by one, the state SIDS organizations got closed down.
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It was our job to make sure that all this stuff got put back into place, because parents who have lost a child, grandparents who have lost their grandchild, need help.
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They need help, they need support and, as a medical, well, first of all, it's still, I think, number three in terms of lives lost infant children.
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It was number one when we lost Stevie, but the money needs to be there for research.
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The money needs to be there for research, the money needs to be there for support of parents, and we spent a long time following the research and meeting the people who were doing the research and trying to help fundraise to make sure that there was an awareness out there.
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It kept us strong, it kept us stronger, it kept us alive, it kept us basically moving forward instead of backwards.
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Just to make sure that everybody listening really understands what we're talking about SIDS sudden infant death syndrome.
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Can you define for us what that is?
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Here's what I'm going to say, and not a whole lot has changed.
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It is a diagnosis.
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After the fact, sids deaths go into the statistical column.
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After autopsy there is a.
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I guess in families there's a genetic component that if you've had one SIDS death in your family your chances of having another one are greater.
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But really and truly, mostly it happens to a baby while they're sleeping and nobody's prepared for this.
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These little babies, they just die in their sleep and we know more about it now than we did, you know, 30 years ago when our baby died.
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But it's still a diagnosis of nothing.
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They can't find anything wrong.
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I think the official word is something diagnosis of nothing.
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They didn't find anything wrong.
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I think the official word is something diagnosis of exclusion.
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They've excluded all other reasons why the baby might have died and if there isn't anything, it's infant death syndrome.
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Wow, Rick and Jane.
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This is Larry Shea.
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Thank you for sharing this story.
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It obviously deserves a lot of attention and I want to thank you for sharing it with us.
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Take us back to the beginning.
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Did anybody talk about SIDS at all when you had the baby, or was it just after the fact?
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People didn't talk about SIDS.
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It was like people didn't talk about cancer.
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You know the big C.
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You didn't mention it.
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Stevie died, jane and I wrote a public service announcement and company I worked with, showtime, produced it, paid for it, even licensed some music behind announcement.
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And a company I worked with, showtime, produced it, paid for it, even licensed some music behind it and it was beautiful and heartbreaking and it didn't work at all.
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And so after the fact we did a focus group study and those parents didn't know that they were coming in to talk about SIDS.
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They thought they were coming in to talk about things that happen to babies, just broadly right Diseases and falling out of the crib and the cat jumping in the bed and all the old wives tales, all the old foolish fables.
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And I wanted to show these parents storyboards for a PSA.
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And we went around the room.
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It was a one-hour session, I think we went 45 minutes in and nobody mentioned SIDS.
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So I sent a note in to the moderator and I said listen, you got to bring up SIDS, we got to show the storyboards.
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So he said to the group, and these were parents, all parents of newborns one to four months.
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Okay, which is sort of the peak of the curve of Sid's incidents and he said well, what about sudden infant death syndrome, or SIDS?
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Everybody in the room pushed back from the table.
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If there had been a thermometer in the room, the temperature would have dropped 10 degrees.
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Everybody knew someone, or knew of someone, who'd lost a baby, but nobody would mention it Since you couldn't do anything about it.
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It was terrifying.
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The pediatricians didn't even talk about it.
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No, there wasn't a thing you could do.
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So that taught us that if we wanted to get people to talk about SIDS, we needed to get to them another way.
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What did you know about SIDS before your tragedy?
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Basically nothing, and I'll go even beyond that.
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Rick and I had been married for a while.
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We were financially stable.
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We knew our marriage was stable.
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We thought, okay, let's have a baby now.
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And we were totally shocked and surprised.
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We thought we were the perfect parents to have a little baby when Stevie died.
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Oh my God.
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It was so what.
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I got mad at God.
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I definitely got mad at God.
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And what do you want us to do?
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And I think that's part of our activism was that we felt that we had to do something to make sure that people were aware of this.
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In that year, which Stevie was born in 84, died in 85, two in a thousand babies live births died, and so back then that was about 7,000 babies a year were SIDS deaths, depending on where you lived in the country.
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There were a lot of people, and we found when we lived in New Jersey, that there was in fact a support group, part of an organization, the National SIDS Foundation, and their job was to run sort of monthly meetings for parents who'd lost babies to SIDS, because we all had similar, almost identical experiences actually, and we all had things that we couldn't talk about in public, that no one wanted to hear, because no one wanted to talk about it.
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Because there was no way to prevent it.
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Right, right.
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So we talked about it in the meetings and I just remember sitting in one meeting and sometimes I had to reach into the back of my brain and bring out a little squirmy thing that I hadn't thought about.
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Yeah, because somebody brought up something and I felt that adding my part to that story would help.
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How difficult was that to open up about it?
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Did you open up about it to each other and the group, or did you just realize that the awareness was so important that you had to open up to a larger group and bring awareness to this?
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Well in terms of meeting up with others.
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You have to remember that this is a diagnosis upon autopsy.
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There's no warning, it just happens, and I carried a lot of guilt.
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I couldn't understand why we, the perfect parents who had prepared so well to have a baby, bring a baby into our lives, how quick this possibly happened to us.
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And even now, I honestly feel that somehow, if tragedy strikes your life, if tragedy comes into your life and you have the ability and the opportunity to make things better for other people, you have to do it.
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You just have to, and I think Rick and I jumped right into that with both feet and really and truly, it gave us something to do other than think about ourselves.
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We actually use the phrase and you said something close to that.
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We actually used the phrase and you said something close to that.
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If you can do it you must do it.
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Yeah, if you can, you must you know.
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And we realized that Jane was an organizer and she ran the state group in New Jersey.
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She's real good at meetings and minutes and all that annoying stuff Me I talk for a living.
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So I was okay doing those meetings.
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But then we got involved on a national level and started figuring out how we could actually make it something that people would talk about and put some pressure on the medical establishment to get research done.
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So I want to get a look into your lives at this point in time.
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So, were you in your late 20s, early 30s at this moment in time, or beyond that?
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We were both 35 when Okay.
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So you're both 35 Actually 34 when Stevie was born, 35 when he died.
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Got it.
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So you're 35 and, rick, you're working at Showtime at that point in time, correct In New York?
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Yep, jane, were you a professional as well.
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I'd been a teacher all my life.
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At that point in time, I was a volunteer at our local environmental center, but I was not getting paid.
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I was doing a lot of work, but I wasn't getting paid, Of course you were getting paid as a mom, but prior to that she was teaching at Bruce Springsteen's high school.
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Oh wait a minute In Freehold New.
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Jersey.
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Now you're making it personal for me as the biggest Bruce Springsteen fan that I know.
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I have taught agriculture all my life.
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I can tell you anything you want to know about growing a beautiful tomato.
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Very nice.
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So you're in your mid-30s and this tragedy strikes and I'm sure that you're lost, you're confused, you're scared, you're upset All the emotions that were going on that moment.
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How long was it in between tragedy striking and being able to create a sense of purpose from this and to create some sort of meaning and a path for yourselves?
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Well, the folks at Showtime, Jane and I, probably the predominant emotion we had is we were angry.
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Yeah.
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Yeah, white heart angry.
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We decided aggression was better than depression.
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Yep.
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The folks at Showtime picked up on that.
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They produced our spot.
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The PR people at Showtime got us on the Phil Donahue show of all things, which was an interesting experience, and then the Joan Rivers show.
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After that, when she had a talk show and four-year audience.
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That was the last time that Jan and I sat and talked about this in public.
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Wow, we'd had private conversations, but that was the last time we did in public.
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But then we did something extraordinarily important in public.
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But then we did something extraordinarily important.
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Stevie died on October 22nd and we decided we could not be around the family my family and Janie's family.
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We just couldn't be there at Christmas.
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Just could not be there at Christmas.
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So Think Debbie Downer.
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Yeah, just couldn't deal with everybody's comments.
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There's no way to know what I mean.
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It's unimaginable.
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Two classic things.
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After Stevie died, my parents came up to stay with us for a while and my dad, sitting there on the couch, came up and he said can you give me something to do?
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I said go mow the lawn.
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Said can you give me something to do?
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I said go, mow the lawn.
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And then shortly after that I was at a trade industry conference and a friend came up to me and I can't believe he actually said this, but I'll never forget it.
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He said yeah, I know how you feel.
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I lost my dog last week.
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Oh wow, are you kidding me?
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But I can't.
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People don't know what to say.
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Do they Right?
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No, kidding me, but I can't.
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People don't know what to say.
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Do they Right?
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No, you don't say it.
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Very often they have nothing to say.
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They have no context when it comes to a parent losing a child.
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So we decided we were going to get away for Christmas and we had a little bit of experience going to Mexico, and right after that was the earthquake in Mexico City, where a lot of the hospitals pancaked, the mothers died and there were babies.
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So we were having a miserable time that Christmas in Mexico, not knowing that Mexico had the highest birth rate in the entire global community.
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Babies everywhere.
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Babies everywhere, babies everywhere this earthquake happened.
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There were a lot of orphans, so we actually went to the local.
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I can't believe we did this.
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We were so naive.
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We went to the local embassy.
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We talked to the people in the embassy about these babies who might need parents because we were parents who were looking for a baby and they said, well, you know, we have an orphanage system here.
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We don't really do this, but we know this person, who women find him and if they want to place a baby and so, to make a long story short, if you remember, hands Across America, I do long story short if you remember Hands Across America.
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That night both of my sisters were in our house in New Jersey because we were going to go to Princeton and hold hands across America and the phone rang like close to midnight.
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We answered the phone.
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It was a lawyer from Guadalajara and he says I hear that you would like to adopt a baby.
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And we said yeah, yeah.
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And one thing led to another.
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There was a whole lot of serendipity involved and we adopted our Ricky Howe.
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He was born on September 24th and we were down there waiting for him to be born.
00:20:04.174 --> 00:20:07.340
I'm going to embarrass you for a minute we were down there waiting.
00:20:07.340 --> 00:20:15.321
Stevie had died previous October, ricky was born September 24th and Jane got her milk back.
00:20:15.634 --> 00:20:19.201
Oh yeah, I got my milk supply back.
00:20:20.255 --> 00:20:21.319
The human body.
00:20:22.035 --> 00:20:23.863
We actually took this as a sign from.
00:20:25.260 --> 00:20:25.361
God.
00:20:25.361 --> 00:20:29.501
And this is a year after Stevie had passed away Eleven months.
00:20:30.458 --> 00:20:35.260
I woke up one morning and I looked brushing my teeth I'm like what's that on my shirt?
00:20:35.260 --> 00:20:37.583
And I got my milk supply back.
00:20:37.583 --> 00:20:41.665
So I called La Leche League and I said, well, what's going on?
00:20:41.665 --> 00:20:43.461
And they said, oh, it happens all the time.
00:20:43.461 --> 00:20:45.621
Go out and get a pump and build up your supply.
00:20:45.621 --> 00:20:46.784
Wow.
00:20:46.844 --> 00:20:47.065
Yeah.
00:20:48.454 --> 00:20:49.817
It was at home.
00:20:49.817 --> 00:20:52.282
People were like are you crazy?
00:20:52.282 --> 00:20:54.868
You're going to give your money to an old Mexican lawyer?
00:20:54.868 --> 00:20:56.234
What are you?